Here are some quick links for January/early February in the area of research ethics. These are also sent out to our Research Ethics mailing list – you can register for these and other updates here.
- New York Times: Your Cells. Their Research. Your Permission? By Rebecca Skloot.
- Nature: UK scientists gain license to edit genes in human embryos, by Ewen Callaway.
- The Guardian: Race is on to develop Zika vaccine but tests on pregnant women raise concern, by Oliver Milman
- CNN: Drug trial participant brain dead, 5 others hospitalized in France, by Jen Christensen.
- Journal of Medical Ethics: Assessing risk/benefit for trials using preclinical evidence: a proposal, by Jonathan Kimmelman and Valerie Henderson, 42:50=53.
- The Hastings Center Report: Balancing Benefits and Risks of Immortal Data: Participants’ Views of Open Consent in the Personal Genome Project, by Oscar Zarate et al., 46(1): 36-45.
- IRB: Waivers and alterations to consent in pragmatic clinical trials: Respecting the principle of respect for persons, by Scott Kim and Franklin Miller, 46(1): 1-5.
- CENTRESblog: Changes to the clinical trials regulations, by Owen Schaefer.
- Bioethics Forum: Could DTC Genome Testing Exacerbate Research Inequities?, by Christine Aicardi et al.
- Human Biomedical Research Act Introductory Workshop – while the afternoon session is full, registration is now open for a morning session that will cover the same material.